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All In. Rare is a community-based program here to support you – individuals, family members, caregivers, and friends – impacted by rare diseases. Together, we work with you to help identify health needs and connect you with support and resources that will help you understand what you need to do, to take care of yourself and your loved ones.

The All In. Rare mission is to assist rare disease communities that are impacted by social and health related disparities by engaging and supporting individuals, family members, and caregivers impacted by rare diseases. Together we enhance diversity, equity, inclusion and belonging with care and research for those affected by a rare disease.

Founding Partners

Global Genes is dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. RARE-X, a research program of Global Genes, provides a collaborative platform for global data sharing and analysis to accelerate treatments for rare disease. www.globalgenes.org

Community Health Council of Wyandotte County (CHC) is a 501c3 organization that aims to enhance the health, and access to health care services. We do this by creating strategic collaborations and innovative programs with our community partners to meet the needs of our community by building meaningful relationships with the people who live, work, worship and serve here is our foundational strength.  www.wycohealth.com

RareKC is a 501c3 organization that drives innovation in the diagnosis, treatment, and care of rare diseases by connecting and inspiring the Kansas City regional community www.rarekc.org

Partners

Alabama Rare is a grassroots organization to unite Alabama around the rare disease population. It acts to bring support for individuals & families, educate the broader community, bring awareness to the population’s needs, and advocate for necessary change to improve healthcare delivery. It aims to celebrate what we have in our backyard, and collaborate with stakeholders to move rare disease diagnostics, policy, delivery of care, and patient experience forward: https://www.alabamarare.org/

All Nations Church strives to have a culture that promotes love, encouragement, fellowship, and growth. Everyday faith is an ethos encouraged by All Nations Church to help us remain inspired and engaged in Bible-based practices, so that we may remain grounded in our relationship with the Lord and with each other. https://ancfairfield.com/

Salem Baptist Church mission is to encourage, guide, and lead people into a growing  and active relationship with Jesus Christ, in which  they can benefit and serve their family, church, and community: For the sake of the Great Commission. http://www.salembaptistkck.org/

Want to learn more about All in. Rare, speak to a community health worker, or become a resource site?