All In. Rare is a community-based program here to support you – individuals, family members, caregivers, and friends – impacted by rare diseases. Together, we work with you to help identify health needs and connect you with support and resources that will help you understand what you need to do, to take care of yourself and your loved ones.

Access Resources

Access information that will help your family, including local and national health & financial resources,  understanding your family’s health history, and   navigating  genetic testing and rare diseases.

Get Involved

Learn more about upcoming local events and how to connect with your community health worker. Learn when there are  rare disease community events in your area.

Want to learn more about All in. Rare, speak to a community health worker, or become a resource site?

Partner Organizations